





Well, here we are again. It is amazing how unprepared you can still feel with all the anticipation that leads up to surgery. This morning started off okay, but very quickly you could tell that the household was not looking forward to what was planned for today. Cari, of course, had more to do than is humanly possible, which starts everything off with expectations that can't possibly be met. The kids got off for school with the only reference point being that mom was going back into surgery.
From everything that we knew about this surgery, this was suppose to be no big deal. The kids were not convinced.
Once the boys were off, the girls got ready while I ran a last minute errand for Cari. When I returned, my father was there and we gave Cari a blessing. I have been pretty anxious but as the day wore on Cari seemed more relaxed.
Now that the important stuff was out of the way, we could get down to business, literally. Cari and I picked up the house, re-worked emails for online shoe partys and sent them out. Cari's mom showed up to graciously watch the kids while we drove to Salt Lake, but by the time we finally left we were behind schedule. The closer we got to Salt Lake, the more uneasy I started to feel. Not that anything was wrong, but the anxiety of, "here we go again" settled in. Cari has been good though trying to put my mind at ease.
So, we arrived about 1:15pm and checked in and waited. Dr. Pattell came in to answer last minutes questions and fill us in on the details of the surgery. The best part for me was to see Cari relax and actually appear excited. (I use the term excited conservatively)
After what seemed like forever, someone finally came to get Cari. It was different this time though, because instead of hooking Cari up to everything, they just walked her away. I snuck in a quick kiss before she was gone. Now here I sit waiting. Hopefully, I will hear how it went soon.
So, it has been a few days since we have been home from the hospital. After the apprehension that was very apparent, we have at least settled into a routine at home.
When we first got home, we showed up about 5 minutes too soon. Our children were heading to Chucky Cheese, to give Cari some time to settle in, but they had not quite left yet. So, of course, after not seeing Cari or I for nearly a week, the kids were anxious to see their mom. We put a hat on Cari and hoped for the best. We expected the girls to have a hard time, but it was the boys that had the hardest time. The boys mustered enough courage to offer a hug and then backed up. The girls were stand offish, but then were clingy to mom. The biggest surprise came later that night when they saw Cari without her hat, the boys complained about feeling dizzy, so we called it a night for them, but the girls became clingy to dad. It wasn't until Kaylee pointed out the fact that she could see the scar that we realized that Cari wasn't wearing the hat any longer, and that seeing her now was different. Eventually that night the girls warmed up, but it wasn't until day 2 that the boys pushed past the changes.
The first two days were the roughest, I actually slept in my own bed, as well as Cari. Cari had some adjustments to make also, as is true to form. Cari woke me up on the first morning after coming from the hospital... from the floor. Her reasoning was that she could not wake me up, but she had no problem doing it from across the room, when she didn't have the strength to make it back to bed. I did wake up, with a heart attack, and unable to comprehend the thinking behind the actions. This is Cari though, thinking that she is helping by not bothering somebody else, even me.
After, this rude awakening, things seemed to settle down to more of an even keel. Cari stayed in bed until someone was around to help her get around. We have started to see some of her energy and strength return, which has been nice.
The biggest and most notable difference has been the swelling that has started to subside. Each day there is noticeable improvement. Cari is still waiting for enough of the swelling to go down so that she can see the new mobility in her face. It is kind of the joke around here as time passes, because when Cari smiles, her mouth smiles, but her eyes, cheeks and forehead stay put. We are looking forward to the day when she can raise her eyebrows.
Thank you, to everyone that has offered help, support, and kind words through this time. Things are quickly improving and we are well on our way back to the way things were before, but for Cari will have things a little "smoother."
Not really sure what I want to put down today. For everyone out there, it may seem as though things are different, but from where I am sitting, it seems like more of the same. Doctors have been in and out of the room from the wee hours of the morning telling Cari that by the numbers she is great and can, or maybe should be thinking about going home. I on the other hand have to sit here and watch Cari barely eat her food, barely have enough strength to walk 50 ft down the hall, and barely able to get her medication again before it has completely worn off.
For anyone that knows Cari, she loves to visit, and really appreciates it when people come and see her, so I know that she is not feeling well when she is telling me that she just doesn't really feel up to visitors. I don't know what to think about it all, but it seems like humanity in general is in question when it is as if the doctors are working more for the insurance companies, than they are for the patient. You really start to get that sense when the doctors themselves say, "by the numbers."
I apologize for the rant, but man it is so draining to keep hearing.
The good news from all the discussions that I have been having may have paid off. It looks like Cari will be here another night at least. There is one resident that seems to be helping to really assess the situation to get Cari back to a more normal Cari. She is still weak and tired, but we are now doing some things to get her medications reduced and scaled back. Maybe that will provide some relief from the drowsy state that she is finding herself in at the moment.
The bright spot today was a visit from a friend of Cari's that stopped by to lift her spirits. Ora had skills to french braid Cari's hair which helped to keep it out of Cari's face. Cari is looking good at this point, and after Ora left Cari was able to go to sleep. It is a maxing to me how many people decide to come into the room when Cari is asleep. I started throwing people out to allow Cari to get some uninterrupted sleep.
This afternoon someone from physical therapy came to work with Cari, and finally someone saw her lack of energy and took note. The therapist had Cari sit on her bed and move pillows from one side to the other. Cari thought the pillows were heavy and didn't make it to the 4th one effectively. A PA on staff came in and a discussion ensued about Cari's lack of energy and inability to stand up straight. But at least for tonight she will be in the hospital. I am sure that we will be at it again tomorrow.
First of all, I am sorry that I have not put up a post yet, especially for those faithfully following Cari's progress. Instead of doing the hourly format that I did yesterday, I'm going to try and hit some of the highlights.
One of the common themes that runs through Cari's days is the fact that she is very weak. When I was trying to feed Cari breakfast, I felt like I was trying to feed Ryan, our 6 year old. Ryan is our pickiest eater and has this routine that he does when he eats. It goes something like this: Ryan puts a bite of food in his mouth, chews it up for about 10 minutes until it resembles a nasty drool and then he mutters, it's yucky, and I can't get it out of my mouth. As the good parents that we, are we tell him, just swallow it, but to no avail, he mumbles, "I can't" usually as it runs down his chin, and onto the floor. Well, that is about what Cari did today, but she wasn't, as happy when I told her you only can't if you say you can't.
Kelli(sister) came to visit Cari today. Kelli did a great job taking care of Cari and helping her to relax. I think it helps Cari to have visitors, but at this stage it also wears her out too. After Kelli left I was able to help Cari to get a shower. It was her first since the surgery, so there was quite a bit to accomplish between avoiding her incision to getting the dried fluids out of her hair. I think that she felt better and she seemed to be able to relax.
All in all it was a fairly uneventful day and Cari seemed to be able to do more, but I wonder if she has over done it. Cari's dad came up tonight and worked on Cari(massage) which helped her to relax while he was here, but as soon as he left, Cari was pretty tired. True to form, when others are around Cari pushes it and then crashes at the end of the day.
3:00 pm - Dr. Cambren (neurologist) just stopped by to check in on Cari. He is very encouraged with the way things are progressing. Cari on the other hand is not as confident that things are as they should be. The doctor has helped Cari see the good things that have occured and laid out some Goals for the next few days. These goals are nothing fantastic like run a mile, but they are the basics. First she needs to eat. Ever since her surgery Cari has not had much of an apetite. To regain her strength she will need to simply eat regular meals. Second, she needs to walk farther then the 10 steps to the bathroom. Physical therapists were here this morning to get her walking and will be back this afternoon, but Dr. Cambren is looking for two more walks today and 5 or 6 walks tomorrow. Third, and forgive me for being blunt, but Cari needs to get her bowels moving and we have been told that if she doesn't do it on her own, they have ways of "helping" her.
4:00 pm - At this point oral pain killers are working well, but Cari is starting to be able to feel when the medicine is wearing off and for her, that is not a great feeling. The physical therapists came back for the second walk down the hall of the day. She walked about twice as far as the last time. She is still not as excited about thoses milestones as i was, but then again, i am not the one that fells like crap and just wants to lay down. When we returned from this walk, Cari was able to get another dose of narcotics and started drifting in and out of sleep.
5:00 pm - Not a lot happened during this hour because the drugs wipe Cari out at the beginning of a dose. Of course, dinner was delivered and so it sat and cooled off most of the time. Every once in a while Cari was arouse just enough to say, "I need to eat." and then back off to lala land she went.
6:00 pm - By 6, Cari is still very groggy but she is now making a more concerted effort to try and eat. Finally, after much prodding and convincing Cari to eat, i am glad to report that she almost ate half a meal. I did say almost half right. This was not a quick process and It took most of the hour.
7:00 pm - Once again Cari is really starting to feel the effects of the pain killer wearing off but she seemed to be handling it a little better this time. The shift change for the nurses is at this time if the day and so they are slow at getting medication to Cari. To pass the time we called our kids and talked to the oldest boys who seemed to be doing a little better tonight. Cari worked really hard to make her voice sound upbeat and positive so that it would come off as positive and reassuring. As soon as she finished and handed me the phone, she muttered weakly, "that wore me out." For the last bit of this hour, we listened to Brian Regan, a comic, that a friend gave to Cari to listen to to pass the time. Now, if you thought that this hour could not get nay better, well... Remember what the 3 goals were? We walked, we ate dinner, and now it was time to try and move the intestinal track. It was not happening on its own, so... That's about all I am going to say about that.
8:00 pm - At 8 it was definitely time to take Cari's medication again. And there was a lot to take. Pain killer, nausea, incontinence, antibiotics - internal and external. We finally got them all done, and then it was time for another walk. This was the farthest walk that Cari has taken, but it was also at her weakest state. Cari starts to shake when she has to exert too much effort when her medication has worn off, but since she had just taken all of her medication, it hadn't yet kicked in. By the time that we got her back into bed, she was spent. I did everything to make her comfortable, just in time.
9:00 pm - Finally all the medicine kicked in and Cari has been able to sleep.
This is the same feeling that I get when the house falls quiet at night. The kids are all safely tucked in their beds and I can finally take a sigh of relief from the long days. Cari is a trooper. It is almost weird to think that just 3 days ago, Cari and I were sitting in a operation prep room, smiling, trying to laugh, and not think about how this moment, right now, would be like. I am glad that she has made it through the horrible accident that we went through, 2 additional children have been added to our family, another horrible surgery, that we are optimistic is the right thing to help her have a better quality if life. And now hopefully a quick recovery. As Cari has told many on staff, here at the hospital, "I am a fighter," and she is, and for that, I love you Cari. Sleep well, tomorrow will be better.