Saturday, November 9, 2013
5 Years ago!
11/09/08 4 years ago..11/09/12
PART ONE
The recent one 11/4/12
Well, I never really wrote anything down about my last surgery, so I figured it was time, for memory sake. I didn't have to be to the Hospital until 1, so I had the morning to finish getting things prepared. Once we got there it took awhile until they started. They got me in my gown, took my vitals, talked to the doctor and then I laid their waiting for my operating room to be ready for me. It was nice to talk to the doctor before hand. He answered lots of my questions and at the time said that after this surgery I should be able to do in office procedures on my eyes from here on out. He looked at a stack of pictures of me that he asked me to bring before hand. He said he would keep them and blow them up in the operating room so while they improve everything they can make me look like Cari as much as they can while they are in there. I guess it also helps them to know where more bone is missing.
Bill was with me until they had me go back for surgery. The only problem was they had me on the hospital bed without Bill forever. In fact I was waiting right outside the door of my operating room while they were finishing up with another patient. The anesthesiologist came and talked to me, my doctor came and took pictures of me and drew on my face with a beautiful purple marker and I just laid there until they were ready for me. It was finally my turn and the next thing you know I'm waking up!
The first 3 or 4 days I couldn't see at all. My eye were bandaged up, which I wasnt exactly expecting so I laid there bored, with no tv or anything, well I take that back I did have PAIN! It was really rough. I had strict rules, NO sleeping on my side, NO sleeping with the head turned on the side PLUS I had to be raised up with 3 pillows at all times to help the swelling. The first night seemed like it lasted forever. I was in so much pain and I couldn't even sleep.
The next morning Bill had to run Kyle to school since he still had his broken arm and he told me he would be back in 5! Well those were the worst 5 minutes of my life as a mother. I thought I was going to have a heart attack. It started out seeeming easy, the girls in my room lying by me watching cartoons. Well, that was just how it started. Now, let me remind you I have NO eyesight at this point and Im not even supposed to get up on my own. Ok, so Kyn asks for milk. I say, "Im sorry sweetie, but you will have to wait until dad gets back, I cant get that for you." She starts to cry. Then, the doorbell rings. I tell the girls to stay and let it go. DO NOT MOVE, well that didnt go over very well. Kaylee took off running and I hear her answer the door. Lucky for me it was just fed ex dropping off a pkg. Then she came back and I tell the girls, "You have to stay here, until dad gets back." SO then, Kay takes off and I hear the front door open. I am just about to get down on my knees to track her down, when Bill gets home! After I made sure he knew to never leave me again until I could see, I realized we had survived and at that point was all that mattered.
After being home a few days I unfortunately passed out. Bill had helped me to the bathroom and as I was sitting on the toilet(no need to read further if you dont want the dirty details) and I told him I felt like I was going to pass out. I say that often, so nothing to scary but then he said I followed through with it. He said it was a little weird because I arched my back and then fell towards the back corner. He was worried about my head since I have holes in my skull and very thin spots from my last surgery, so he protected my head. When I woke up I couldn't hear anything and could see Bill yelling at me. Then I heard him yelling, "Cari, Cari" Bill said I was out for about a minute and when I woke up I was laying in a pile of urine and my fingers were sticking straight out, I couldn't bend them for like 15 mins. Bill wanted to get me up in the bath but I couldn't move I was so weak. After about 15 minutes he got me in the bath. I feel so lucky to have someone like Bill taking such good care of me. I think I add a lot of stress to that poor mans life. I wish he didnt have to go through all of this with me.
Once I was able to get the bandages off I slowly started opening my eyes. It was very painful and hard to do, in fact at one point I thought I dont think I am ever going to be able to open these eyes again! I still had to sleep raised up and not turn my head for 2.5 weeks! That made sleeping really hard. Im not a back sleeper! This surgery was harder in certain ways and easier in others. I felt like i had more energy overall than the last ones, I wanted to get up, more than I even could. The hardest part ofcourse was the pain.
I met with my doctor and learned a lot about what they did in the operating room. I had 8 visible incisions around my eyes on my face. They hide them well, in my eyebrow...eyelid etc. I also learned that the big incisions were inside my eye where they lifted the eyelid and cut inside so they were able to transplant fake bone. They usually use skull bone, but I have no more to give after my last surgery so they used a synthetic bone. They say it looks just like bone. They used that to reconstruct my orbital sockets and build up the eyes. They also made an incision in my belly button where they removed a tiny (and I say tiny because I wonder if they even took any)bit of fat to inject around the eyes, to give them a pillow to lay on. They say that the body will absorb some of the fat and I will be honest, I can see that already! They say that everyone body deals with it differently.
After meeting with the doctor it sounds like they will have to go in and do this again. My right eye is very recessed still. They can only bring it out so much at a time without risking snapping a nerve and making me blind. I guess we will see what happens. I meet with him again around Christmas and then 2 months following, so if Im lucky I wont have surgery again otherwise its looking like March!
I look in the mirror now and wonder what I should even look like. I have had so many different faces over the last 4 years. I do think I am looking a little more like myself. I love peoples honesty, because it confirms my beliefs. I hate it when people say I look great and I know otherwise. If they said, "You look great considering", then I like that but without the considering I feel like they are just trying to make me feel better. A friend of mine said it best(and she didnt know me before the accident). She said, now looking back and seeing you now, your face looked unstable. This last surgery makes you seem more solid." Perfectly stated. Inside my face I have been missing BONE, how can I look stable without it, in fact I wasnt. All of these surgeries are protecting me long term, along with many other things they are to do, but I am grateful that hopefully someday I will be able to play ball with my kids again.
Here are some pictures, if you want to look!
The old Cari! Before Surgery!
Cari Back in Surgery 10/02/12
Well, here we are again. It is amazing how unprepared you can still feel with all the anticipation that leads up to surgery. This morning started off okay, but very quickly you could tell that the household was not looking forward to what was planned for today. Cari, of course, had more to do than is humanly possible, which starts everything off with expectations that can't possibly be met. The kids got off for school with the only reference point being that mom was going back into surgery.
From everything that we knew about this surgery, this was suppose to be no big deal. The kids were not convinced.
Once the boys were off, the girls got ready while I ran a last minute errand for Cari. When I returned, my father was there and we gave Cari a blessing. I have been pretty anxious but as the day wore on Cari seemed more relaxed.
Now that the important stuff was out of the way, we could get down to business, literally. Cari and I picked up the house, re-worked emails for online shoe partys and sent them out. Cari's mom showed up to graciously watch the kids while we drove to Salt Lake, but by the time we finally left we were behind schedule. The closer we got to Salt Lake, the more uneasy I started to feel. Not that anything was wrong, but the anxiety of, "here we go again" settled in. Cari has been good though trying to put my mind at ease.
So, we arrived about 1:15pm and checked in and waited. Dr. Pattell came in to answer last minutes questions and fill us in on the details of the surgery. The best part for me was to see Cari relax and actually appear excited. (I use the term excited conservatively)
After what seemed like forever, someone finally came to get Cari. It was different this time though, because instead of hooking Cari up to everything, they just walked her away. I snuck in a quick kiss before she was gone. Now here I sit waiting. Hopefully, I will hear how it went soon.
ER
Doctor Update 03/13/12
-biggest problem is that my left eye doesn't close all the way and they don't want my eye to get infected...can lead to serious vision problems, so I will start using certain meds on it and that is now priority to my next surgery, which will be incisions under the eye...but still 3-6 months out. They have talked about inserting a weight in my eyelid.
-They want me to meet with my eye doctor by next week and then again a few months later as we get closer to a surgery date.
-the original idea of another surgery 3-6 months out is being postponed...do the eyes first, and then after evaluation of my progress and after swelling goes down re-evaluate. looks like it will be more like 6 months to a year.
-I have been given clearance to hold my girls again! YES!!!!
-I need to do daily things to my incisions, especially under my eyes.
-NO rough housing/playing with kids that could be harmful...NO throwing balls, sports etc. They will reevaluate that in 3 months. I can start walking and getting stronger and then start running when it feels ready( I asked about that one, because this warm weather is really going to make me want to run)...I have to be smart and listen to my body.
-They believe my bones in my skull that were cut and grafted are starting to take hold to my skull. They felt my head and can feel the weak points still, but feel confident its headed in the right direction. Still have to be very careful with my head
-they are not quite sure why I still cant open my mouth very wide(want to wait a little and see if it gets better) also see an orthodontist to help stop my grinding teeth
-They said I need to still listen to my body because when its tired its tired because it is still rebuilding bone, blood, skin, etc. BUT its good to push me a little more each day to keep getting stronger.
*****BIGGEST NEWS...Let me know if you want to see some of my pictures they took of me while I was in surgery. There are a few of me intubated right before surgery, then some with my head cut open with the plates in my head and then some after they transplanted my bone(you can also see where my bone in my skull was cut and the second layer replaced) and then one right after I was stitched up. If a lot of people want to see them, then MAYBE I will put them up here, but it is kinda bloody so I dont really know if I should. Some of my kids wanted to see them and they did pretty good with it. It is pretty cool to see it.
So overall it was pretty good. Thanks to all of those who helped with the kids while we were up there. We have never had to wait so long, but they were really behind schedule today. It was a good thing we had the IPAD to entertain us while we waited forever! We did spend a lot of time with the 3 docs though, so it was good. They made sure to remind me that this was a HUGE surgery and that it is completely normal to be exhausted and need to rest, but to me I am ready to start moving on and enjoying my family more again. I just cant wait for the day I can drive again!
getting there 02/26/12
My kids spent the weekend with my mom in Fairview, riding horses and playing in the snow, while Bill and I enjoyed a peaceful, quiet house. Yet while it was so quiet I had a lot of time to sit back and think...Today was just rough for me. For those of you that know me, my personality is one of those that could be explained as crazy, bubbly, over enthusiastic, social, busy body, workaholic(to name a few). If you think of all of those explanations and then think of me sitting in a bed all day, they just dont jibe! Its hard lying here in pain, when I would much rather be up and about playing and working. I think I might just have a small case of the blues. I know a lot of my swelling is going down, but I still look at myself in the mirror and get discouraged. I cant move my eyebrows and my face feels so weird. First of all, Im not used to having bone in my face anymore, so its taking a little adjusting too. The eyebrow thing scares me. I have always been one of those people that said, I would never want plastic surgery because it makes people look fake. They have no REAL expressions when they talk because NOTHING moves. Currently, I feel like one of those situations. Hopefully that will change as swelling continues to go down. My face feels all tingly and swollen(you know like after you are at the dentist). Anyway, I just felt down. I must admit other than feeling horrible in the hospital I have been doing pretty good until today. You have to have some bad to appreciate the good, right?
Anyway, so this is where the story gets good. I had the thought today that the prayers must have stopped in my behalf since Im having a break down. I know, I didnt even like my attitude with that thought (Dont worry, I will repent). So, here I am feeling sorry for myself and wishing i was better already. Then Bill starts getting some messages from friends that want to come and visit. Before I knew it my entire afternoon-evening was filled up with visitors(the most so far). Granted I was EXHAUSTED and tried to seem fine, but I did that because that was exactly what I needed. At the end of the night one of my friends told me she didnt know why she came, she just felt inspired. What a blessing she was! She was inspired along with everyone else and brought me exactly what I needed. I feel so blessed. One thing lately that I have really felt is the power of prayer in my life. I cant tell you how much my testimony has grown in that category. I have witnessed it in my own life and even in another little family that I dont even know, but follow their blog that I love to read. Prayer is real, and I feel so blessed to have that knowledge. So, here I am partially repenting for my bad and ungrateful attitude today when in reality I have nothing to complain about.
I will keep going and keep improving and a year from now I will be able to look back and say, "I did that, I made it through that, and I learned from it. These experiences are making me who I am today!"
Cari
Progress 02/22/12
So, it has been a few days since we have been home from the hospital. After the apprehension that was very apparent, we have at least settled into a routine at home.
When we first got home, we showed up about 5 minutes too soon. Our children were heading to Chucky Cheese, to give Cari some time to settle in, but they had not quite left yet. So, of course, after not seeing Cari or I for nearly a week, the kids were anxious to see their mom. We put a hat on Cari and hoped for the best. We expected the girls to have a hard time, but it was the boys that had the hardest time. The boys mustered enough courage to offer a hug and then backed up. The girls were stand offish, but then were clingy to mom. The biggest surprise came later that night when they saw Cari without her hat, the boys complained about feeling dizzy, so we called it a night for them, but the girls became clingy to dad. It wasn't until Kaylee pointed out the fact that she could see the scar that we realized that Cari wasn't wearing the hat any longer, and that seeing her now was different. Eventually that night the girls warmed up, but it wasn't until day 2 that the boys pushed past the changes.
The first two days were the roughest, I actually slept in my own bed, as well as Cari. Cari had some adjustments to make also, as is true to form. Cari woke me up on the first morning after coming from the hospital... from the floor. Her reasoning was that she could not wake me up, but she had no problem doing it from across the room, when she didn't have the strength to make it back to bed. I did wake up, with a heart attack, and unable to comprehend the thinking behind the actions. This is Cari though, thinking that she is helping by not bothering somebody else, even me.
After, this rude awakening, things seemed to settle down to more of an even keel. Cari stayed in bed until someone was around to help her get around. We have started to see some of her energy and strength return, which has been nice.
The biggest and most notable difference has been the swelling that has started to subside. Each day there is noticeable improvement. Cari is still waiting for enough of the swelling to go down so that she can see the new mobility in her face. It is kind of the joke around here as time passes, because when Cari smiles, her mouth smiles, but her eyes, cheeks and forehead stay put. We are looking forward to the day when she can raise her eyebrows.
Thank you, to everyone that has offered help, support, and kind words through this time. Things are quickly improving and we are well on our way back to the way things were before, but for Cari will have things a little "smoother."
View at your own risk. These are surgery pictures
Day 5 - 4th Day After 02/18/12
Not really sure what I want to put down today. For everyone out there, it may seem as though things are different, but from where I am sitting, it seems like more of the same. Doctors have been in and out of the room from the wee hours of the morning telling Cari that by the numbers she is great and can, or maybe should be thinking about going home. I on the other hand have to sit here and watch Cari barely eat her food, barely have enough strength to walk 50 ft down the hall, and barely able to get her medication again before it has completely worn off.
For anyone that knows Cari, she loves to visit, and really appreciates it when people come and see her, so I know that she is not feeling well when she is telling me that she just doesn't really feel up to visitors. I don't know what to think about it all, but it seems like humanity in general is in question when it is as if the doctors are working more for the insurance companies, than they are for the patient. You really start to get that sense when the doctors themselves say, "by the numbers."
I apologize for the rant, but man it is so draining to keep hearing.
The good news from all the discussions that I have been having may have paid off. It looks like Cari will be here another night at least. There is one resident that seems to be helping to really assess the situation to get Cari back to a more normal Cari. She is still weak and tired, but we are now doing some things to get her medications reduced and scaled back. Maybe that will provide some relief from the drowsy state that she is finding herself in at the moment.
The bright spot today was a visit from a friend of Cari's that stopped by to lift her spirits. Ora had skills to french braid Cari's hair which helped to keep it out of Cari's face. Cari is looking good at this point, and after Ora left Cari was able to go to sleep. It is a maxing to me how many people decide to come into the room when Cari is asleep. I started throwing people out to allow Cari to get some uninterrupted sleep.
This afternoon someone from physical therapy came to work with Cari, and finally someone saw her lack of energy and took note. The therapist had Cari sit on her bed and move pillows from one side to the other. Cari thought the pillows were heavy and didn't make it to the 4th one effectively. A PA on staff came in and a discussion ensued about Cari's lack of energy and inability to stand up straight. But at least for tonight she will be in the hospital. I am sure that we will be at it again tomorrow.
4th Day - 3rd Day After 02/18/12
First of all, I am sorry that I have not put up a post yet, especially for those faithfully following Cari's progress. Instead of doing the hourly format that I did yesterday, I'm going to try and hit some of the highlights.
One of the common themes that runs through Cari's days is the fact that she is very weak. When I was trying to feed Cari breakfast, I felt like I was trying to feed Ryan, our 6 year old. Ryan is our pickiest eater and has this routine that he does when he eats. It goes something like this: Ryan puts a bite of food in his mouth, chews it up for about 10 minutes until it resembles a nasty drool and then he mutters, it's yucky, and I can't get it out of my mouth. As the good parents that we, are we tell him, just swallow it, but to no avail, he mumbles, "I can't" usually as it runs down his chin, and onto the floor. Well, that is about what Cari did today, but she wasn't, as happy when I told her you only can't if you say you can't.
Kelli(sister) came to visit Cari today. Kelli did a great job taking care of Cari and helping her to relax. I think it helps Cari to have visitors, but at this stage it also wears her out too. After Kelli left I was able to help Cari to get a shower. It was her first since the surgery, so there was quite a bit to accomplish between avoiding her incision to getting the dried fluids out of her hair. I think that she felt better and she seemed to be able to relax.
All in all it was a fairly uneventful day and Cari seemed to be able to do more, but I wonder if she has over done it. Cari's dad came up tonight and worked on Cari(massage) which helped her to relax while he was here, but as soon as he left, Cari was pretty tired. True to form, when others are around Cari pushes it and then crashes at the end of the day.
Day 5 02/17/12
End of Day 3 02/15/12
3:00 pm - Dr. Cambren (neurologist) just stopped by to check in on Cari. He is very encouraged with the way things are progressing. Cari on the other hand is not as confident that things are as they should be. The doctor has helped Cari see the good things that have occured and laid out some Goals for the next few days. These goals are nothing fantastic like run a mile, but they are the basics. First she needs to eat. Ever since her surgery Cari has not had much of an apetite. To regain her strength she will need to simply eat regular meals. Second, she needs to walk farther then the 10 steps to the bathroom. Physical therapists were here this morning to get her walking and will be back this afternoon, but Dr. Cambren is looking for two more walks today and 5 or 6 walks tomorrow. Third, and forgive me for being blunt, but Cari needs to get her bowels moving and we have been told that if she doesn't do it on her own, they have ways of "helping" her.
4:00 pm - At this point oral pain killers are working well, but Cari is starting to be able to feel when the medicine is wearing off and for her, that is not a great feeling. The physical therapists came back for the second walk down the hall of the day. She walked about twice as far as the last time. She is still not as excited about thoses milestones as i was, but then again, i am not the one that fells like crap and just wants to lay down. When we returned from this walk, Cari was able to get another dose of narcotics and started drifting in and out of sleep.
5:00 pm - Not a lot happened during this hour because the drugs wipe Cari out at the beginning of a dose. Of course, dinner was delivered and so it sat and cooled off most of the time. Every once in a while Cari was arouse just enough to say, "I need to eat." and then back off to lala land she went.
6:00 pm - By 6, Cari is still very groggy but she is now making a more concerted effort to try and eat. Finally, after much prodding and convincing Cari to eat, i am glad to report that she almost ate half a meal. I did say almost half right. This was not a quick process and It took most of the hour.
7:00 pm - Once again Cari is really starting to feel the effects of the pain killer wearing off but she seemed to be handling it a little better this time. The shift change for the nurses is at this time if the day and so they are slow at getting medication to Cari. To pass the time we called our kids and talked to the oldest boys who seemed to be doing a little better tonight. Cari worked really hard to make her voice sound upbeat and positive so that it would come off as positive and reassuring. As soon as she finished and handed me the phone, she muttered weakly, "that wore me out." For the last bit of this hour, we listened to Brian Regan, a comic, that a friend gave to Cari to listen to to pass the time. Now, if you thought that this hour could not get nay better, well... Remember what the 3 goals were? We walked, we ate dinner, and now it was time to try and move the intestinal track. It was not happening on its own, so... That's about all I am going to say about that.
8:00 pm - At 8 it was definitely time to take Cari's medication again. And there was a lot to take. Pain killer, nausea, incontinence, antibiotics - internal and external. We finally got them all done, and then it was time for another walk. This was the farthest walk that Cari has taken, but it was also at her weakest state. Cari starts to shake when she has to exert too much effort when her medication has worn off, but since she had just taken all of her medication, it hadn't yet kicked in. By the time that we got her back into bed, she was spent. I did everything to make her comfortable, just in time.
9:00 pm - Finally all the medicine kicked in and Cari has been able to sleep.
This is the same feeling that I get when the house falls quiet at night. The kids are all safely tucked in their beds and I can finally take a sigh of relief from the long days. Cari is a trooper. It is almost weird to think that just 3 days ago, Cari and I were sitting in a operation prep room, smiling, trying to laugh, and not think about how this moment, right now, would be like. I am glad that she has made it through the horrible accident that we went through, 2 additional children have been added to our family, another horrible surgery, that we are optimistic is the right thing to help her have a better quality if life. And now hopefully a quick recovery. As Cari has told many on staff, here at the hospital, "I am a fighter," and she is, and for that, I love you Cari. Sleep well, tomorrow will be better.